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Category archive for: Flyinglady Training

Cerebral Palsy: The good, the bad and everything in between

Posted in Accessibility, Cerebral Palsy, Disability Awareness, Disabled Access, Education, Equality & Diversity, Fighting for Change, Flyinglady Training, Making a difference, My writing, Personal, Social Model of Disability, Uncategorised, and World CP Day

This is my life, my feelings, my achievements and frustrations of living with Cerebral Palsy

Campaigning – I’ve spent the last ten years supporting and campaigning for the rights of Disabled People. I ran a campaign to improve the accessibility of my local area – taking it as far as No. 10 Downing Street.  Find information about my “Great Barr Great” Campaign here

Exhausting – Having CP means every day tasks can take me longer and I get tired easily. But I don’t let it stop me!

Rebel – You tell me, “You can’t” and I’ll tell you, “Just watch me!” I thrive on proving people wrong and achieving what might be considered the impossible!

Exciting – I truly believe my life wouldn’t be as fulfilling and as exciting as it is without my Cerebral Palsy. Life has taken me down many exciting paths so far and I’m grateful for that.

Brave – Please don’t call me brave. I’ve always had CP and I’m just living my life the only way I’ve ever known – I’m not brave or special. I’m just Aideen.

Regrets? – Would I have a life without CP if I could? Not a chance. It’s made me who I am and I wouldn’t change that.

Awareness – My training business is focused on raising awareness of disability and making life easier for other disabled people by changing attitudes. And believe me when I say, here in 2017, that there’s still a lot of work to be done in changing how people view disability.

Living – I’m just trying to live my life. I hope World CP Day will make that a little easier by making people more aware of CP and it’s implications.

 

Passionate – I’m guessing you know by now the passion I have for making a difference to the lives of others with disabilities. The Social Model of Disability made huge headway in changing the way society views disability but unfortunately, discrimination is still occurring regularly. This has to change and disabled people have to be put on an equal footing with everyone else in society.

Accessibility – Getting around in a wheelchair is far from simple and I think I’m getting a name for myself in trying to identify and put right the problems! The Equality Act 2010 intended to address such issues and yet I still find accessibility issues a major barrier to me leading a “normal” life – whatever that is!

Lonely – I don’t mean this in the traditional sense, but sometimes it can feel quite lonely fighting for change and it can feel like an uphill struggle. World CP Day is an opportunity for people to pull together and raise awareness in oppose to being a lone voice, as it often feels.

Scary – There are times, when as confident as I am, having Cerebral Palsy can be scary. When I’m meeting someone new and not sure if they will understand my speech; when I’m in a new environment and unsure how others will react to me. Awareness of CP really helps take away that fear.

Yes – My mum always told me there was no such word as can’t so if I can find a way to do things, the answer is always yes!

 

See what I did there?!

 

If you or someone you know has CP, please get in touch and if there’s anything I can help you with just let me know.

Corporate training and support also available – please contact Flyinglady.

Disability Etiquette equals good manners & common sense

Posted in Accessibility, Cerebral Palsy, Customer Service, Disability Aids, Disability Awareness, Disabled Access, Equality & Diversity, Fighting for Change, Flyinglady Training, Media, and Personal

My latest book, “A disability Etiquette Guide” is something I’ve been wanting to write for a while now and last week, I was reminded why it’s so important for me to write it.

I was on my way to Nottingham, to the Charity CP Sport, of which I am a proud trustee. I asked for the ramp to be put down  as I use an electric wheelchair. It’s a popular train but I was absolutely astounded by my fellow passengers, who proceeded to rush on to the train whilst the customer service guy was attempting to put the ramp into position for me.

They all rushed past him and me, desperate to claim a seat and a place for their luggage. Never mind thinking about me and how it might be easier for me to get into the wheelchair spot when the carriage is relatively clear of passengers and luggage.  Never mind simple manners and common sense.

One passenger even walked up the ramp in front of me! Unbelievable!

And that’s the essence of my book: Good manners and applying common sense can go a long way in improving the lives of those with disabilities.

Please offer me a seat – improving travel for disabled people?

Posted in Accessibility, Customer Service, Disability Awareness, Disabled Access, Disabled Parent, Equality & Diversity, Flyinglady Training, Media, Personal, and Public Transport

 

Whilst browsing through my twitter account yesterday, I became aware of a new scheme which Transport for London are trialling, which encourages passengers to give up their seat for someone who needs it more, particularly disabled passengers.  Participating passengers will have a card and wear a badge, saying “Please offer me a seat.”

As a disabled wheelchair user who regularly uses public transport, albeit not in London much, I have very mixed feelings about this.  Although I am fortunate enough to at least always have my own seat, (thankfully!)  I am often left very frustrated by my fellow passengers attitudes, who fail to consider my needs by pushing on to trains or buses in front of me and using the designated wheelchair space as a dumping ground for their luggage. (Rather than taking the time to put it in the designated space for luggage)  It is much easier to manoeuvre my wheelchair before everyone else gets on but few people ever consider this.

So on the one hand, I think Transport for London should be generously applauded for taking the initiative to improve things for disabled people; they have identified this as a significant problem and are taking proactive steps to improve the experience for disabled passengers, particularly those who may not feel confident in speaking up to tell people what they need.

But on the other hand, I feel sad and frustrated that it’s considered that such schemes are needed. If people were more considerate and thoughtful, we would all have a much more positive experience of public transport, including disabled people.  If we all moved as far as possible, leaving the front seats available for those who need them, as is the intention, there would be less need for people to move – and be torn away from their Smart Phones! 🙂

Common sense also plays a big part.  We all need to be aware of those around us and be prepared to assist those who may need a seat or even assistance with luggage etc.

I think many disabled people may also feel self-conscious about wearing a badge which advertises the fact that they have a disability. Others may feel cheeky about asking for a seat, particularly if their disability isn’t immediately obvious. And although I understand that the scheme relies upon goodwill, unfortunately this isn’t always forthcoming and some disabled people may fear confrontation from those who question their greater need for a seat.

Despite my reservations, I hope the scheme is successful and at the very least, encourages people to be a little more considerate of the needs of their fellow passengers.

Disability Awareness for Kids – Its not weird, just different.

Posted in Cerebral Palsy, Disability and kids, Disability Awareness, Disabled Access, Family, Flyinglady Training, Making a difference, and Personal

I was on a train recently, travelling home from visiting my sister and best friend in London.  After a good night out the evening before, I was feeling quite tired and hoped to pass the journey quietly with my Kindle for company.

At one of the stops, a mother with her young daughter got on and sat opposite me.  The daughter must have been around six or seven and was very chatty! There went my quiet journey home but I smiled as the little girl asked her mum question after question,  no doubt driving her mum mad!  Being so inquisitive, the little girl’s attention soon turned towards me and she asked her mum “why does that lady need a wheelchair?”

Staring out the window, I waited to see how mum would reply all the little girl got was “I don’t know” so I decided to try and help. “I have something wrong with my legs, they don’t work properly.” I told the little girl cheerily.  I hoped her mum might engage with me, if only a little bit.

Instead, the little girl turned to her mum, telling her “I sounded weird”.  I’d hoped mum might correct her and explain that the word weird wasn’t very polite but mum just asked her to be quiet – not too much avail.

The incident made me smile but it also saddened me.  Mum didn’t seem interested in engaging or educating her daughter but perhaps, more likely, didn’t know how to and maybe, was afraid of offending me.  But it really was a missed opportunity for the little girl, particularly as I showed my willingness to engage with her.

That’s why I’m so passionate about my “Disability Awareness for Kids” sessions and have decided to offer them for free until the end of this academic year.  Parents and even teachers may feel awkward about talking about disability, but it really is important that they understand the issues and get honest answers to their questions.

They need to know it’s not weird. Just different.

Cerebral Palsy: An Introduction

Posted in Cerebral Palsy, Disability and kids, Disability Awareness, Disabled Access, Disabled Parent, Does it wet the bed?, Flyinglady Training, and Making a difference

This month is Cerebral Palsy Awareness Month so I’m going to be sharing a number of articles to raise awareness of the condition, what it’s like to live with it and the challenges that it presents.  Later this month, I’ll also be sharing advice for parents who have a child with CP and maybe some of my favourite bits from my memoir about living with the condition – “Does it wet the bed?”

What is Cerebral Palsy (CP)?

Cerebral palsy is a general term for a number of neurological conditions which affect movement and co-ordination.

Cerebral Palsy is caused by problems in the parts of the brain which is responsible for controlling muscles.  The brain becomes damaged either before, during or just after birth, or sometimes, during early childhood.

What are the three main types of CP?

Ataxiaa lack of muscle control when performing voluntary movements.  (National Institute of Health, 2011)

Spasticity Causes stiff or tight muscles and exaggerated reflexes.

DyskineticCharacterised by fluctuation in muscle tone which is either too loose or too tight.

What are the causes of CP?

  • An infection caught by the mother during pregnancy;
  • A lack of oxygen;
  • A difficult or premature birth;
  • Bleeding in the baby’s brain;
  • Changes in the genes that affect the brain’s development.

 

There will be lots more information coming over the next month, but if you’re a business who would like free staff training on Cerebral Palsy, please Contact Flyinglady to book your session.